Twin update

As most of you know a few weeks ago the specialist I am seeing diagnosed us with Twin to Twin Transfusion Syndrome and they wanted me to go down to the Childrens Hospital Of Philadelphia (CHOP) to have a laser procedure on the placenta to try and correct the problem. Upon speaking with CHOP they told me they needed more measurements before they could determine whether or not I was a candidate for the surgery, so they were going to wait until I'd had another ultrasound to make a decision. I had that ultrasound one week ago and was assured someone would be in touch with me that evening to let me know where we would be going from there. Thursday night came and went, as did Friday, and the entire weekend. Finally on Monday I called CHOP and asked what was going on and was told my doctors office was supposed to call me Thursday to let me know. Figures. She told me she didn't have the full report of the ultrasound but from what they were given it did not appear to her to be TTTS, but that I needed to see my doctor.

Fast forward to today - I had another ultrasound and met with the specialist immediately afterwords. He told me that while he's not 100% convinced it's not TTTS, I am not a candidate for the surgery. He told me at this point he is still seeing things that are concerning and that we need to be prepared to face the "very real possibility" that Evie will not survive. However, at this point, beyond bed rest and fluid intake, there is nothing we can do but wait and see.

So that's where we are currently. Waiting. Evie is still growing, so thats a good sign, and to be honest I'm rather irritated with the specialist. Every time we see him he's like a walking omen of death - he truly believes, and is trying to convince me, of the worst in this situation. He always seems so sure that at least one baby will die. The frustrating thing is both the nurse and the specialist at CHOP said that yes, Evie is smaller and her fluid level is lower, but otherwise she is stable and other other results are normal. If you ask my specialist, he'd tell you that no, shes not stable, and she probably won't be alive at the next ultrasound. I understand they need to make us aware of the reality, but there's reality and then there's negativity. I refuse to give up hope. She is growing every week, she's moving, she's alive - and my God is bigger than all of this. He gave her life and he can sustain it if he so chooses. I'm not giving up my faith that she can survive this.

As I said before, I my first milestone will be 28 weeks. If we can get there, chances are good that both babies will survive outside of the womb. And it is a real possibility that we will need to deliver much sooner than we'd like, but if we can make it to 28 weeks, every day their chances of being healthy and stable grow. 2 more months. We need God to do this, there is nothing we can do, and we would truly appreciate as many prayers as we can get. I believe fully in the power of prayer, especially united prayer.

So that's where we are - I will continue to have weekly ultrasounds until further notice. If anything changes I'll let you all know. Thank you so much for your prayer and support this far, it means more than you could understand. We love you all.